The term Pathological Demand Avoidance is considered by many to be misleading. The real issue, in my own observation and experience (as someone with Asperger’s Syndrome and PDA and multiple adult children and grandchildren the same), is really about being in personal control of our own circumstances — in other words, it’s about AUTONOMY.
I prefer the terms Pervasive Desire for Autonomy (in milder instances) and Pernicious Demand for Autonomy (in more severe instances). I tend to vary between these levels, depending on the situation.
What is Pathological Demand Avoidance (PDA)?
PDA (pathological demand avoidance) is a behaviour profile within the autism spectrum. We explain what PDA is, the characteristics of PDA and how to begin the assessment process. We also look at guidelines for parents and education staff.
PDA Diagnostic Criteria
Professor Elizabeth Newson revised and refined her descriptions of the PDA profile as her research and clinical understanding grew. This is the third revision of the criteria published by the Elizabeth Newson Centre in 2002 and subsequently included in the first peer-reviewed article of PDA in the Archives of Diseases in Childhood (Newson et al. 2003).
An Aspie insight into Pathological Demand Avoidance syndrome
An excellent, and in depth, exploration of this relatively recent addition to the Autism Spectrum — Pathological Demand Avoidance Syndrome.
PDA, temporary incapacity and the opportunity to heal — Kristy Forbes
Australian Autism and Neurodiversity Support Specialist, Kristy Forbes, shares incisive insights — and practical ideas for dealing with, and healing, PDA and associated trauma.
“Can’t help won’t” — Pathological Demand Avoidance syndrome
Although it was first identified by psychologist Elizabeth Newson in the 1980s, when I started writing this post, Pathological Demand Avoidance syndrome (or PDA) had received barely any media coverage in more than 30 years, but over the last few months this has begun to change. In addition to two new books on the condition being published, in the UK it was highlighted by Channel 4, on its Born Naughty? documentary strand, and saw more people made familiar with the condition thanks to ITV’s Girls With Autism film, which follows the work of Limpsfield Grange, a specialist state-run school for girls close to my home in Surrey.
Changing the narrative about Autism and PDA, one conversion at a time
Insights and understanding from an Aspie author and mother with a keen interest in PDA and its causes and treatment.
Highly sensitive Neuroception may be at the heart of PDA — the FIVE Fs
Fascinating article by the same author — the Five Fs should be mandatory reading for all Aspies, parents and families of Aspies, teachers and carers of Aspies.
PDA and ARFID — Avoidant and Restrictive Food Intake Disorder
ARFID was introduced in the fifth edition of the Diagnostic and Statistical Manual (DSM-5) in 2013, so it is still relatively new.
You may have seen articles like this one describing the link between Autism and Anorexia:
The link between Autism and Anorexia is becoming more widely accepted, but there is much less research about the relationship between Autism and ARFID — and none, that I have found, about the relationship between PDA and ARFID.
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